Rainbows and faith

November 19

This makes day five for Cora's stay in the Mott Children's Hospital. Today was definitely a better day for her. She was able to get off her high flow and is on room air and loving the fact that she no longer has a tube stuck in her nose. They decided to just remove the tubing to stop the water that kept flying into her nose and making Cora panic. The respiratory therapist watched her and Cora was breathing well enough to leave the tubing off. Yeah, one more tube gone.

One of Cora's chest tubes was leaking and when she would breathe or cough it would pull air back and forth within the drainage in the tube. So unfortunately, the dressing had to be redone and the all the tape again removed and replaced. Cora's skin is not doing very well with all this and she is bleeding from places that haven't seen surgery, just the war of tape.

Despite all this, she is doing well today. Actually got a few smiles, several “oh-ma's” and some raspberries today.

The Doctors are looking at moving Cora out of moderate care and into a regular room tomorrow . Her chest tubes are suppose to be removed tomorrow as well. I am sure once this happens Cora will do even better in the pain management department. The new formula they put Cora on seems to be working well and the fatty drainage has decreased a great deal. She wouldn't eat it warmed up, but loves it cold and sucks it right down. Cora is nursing from the bottle again with no sweating or panting.

“”Those that believe the storm will pass will see the rainbow before others know the rain has stopped.”” These words kept echoing through my mind as I watched Cora today. By her presence in my life and watching her continue to be undaunted by yet another surgery and various setbacks, she has taught me that even in times of struggle we must believe and have faith. And most times this has to be done blindly and without worrying that the outcome will be what we want it to be. Because the actual outcome is usually better than anything we could have imagined.

No high flow anymore!

 sharing raspberries