While
Cora's hands are turning purple with any extensive exercise, her well
being and overall happiness is at a high. The swelling in her hands
and feet come and go depending on how much she is rolling around and
playing, yet she babbles away and continues on her mission to reach
whatever toy has captured her attention.
When
being weighed yesterday the scale showed that Cora has gained another
ounce. Yeah for her! Dr. Statler and I both looked at each other
and smiled a huge chest-ire cat smile and she said, “An ounce in
the right direction, we'll take it!”. I agreed whole heartily.
The
four hour trip leaves time for reflection while I am driving, and a
time of rest for Cora. The truck is quiet, the baby babbles softly
and blows raspberries and music plays quietly in the background. The
sun shines in the windshield and warms the truck on a cold winter day
and the roads were clear. Reflection is an easy thing when the day
is quiet and the truck is filled with a babies quiet snores. I
started thinking about my and Cora's travels and this journey we are
on. Traveling the two hours to see a pediatrician to some parents
would seem ridiculous. For me, it is a necessity to Cora's overall
health and well being. This is not something I would have considered
doing if you had asked me before Cora was conceived. I probably would
have looked at you funny and said “No way, would I travel four
hours to take my child to a doctor just for a check up.” But
travel four hours is just what I did yesterday and I did it for my
child. Why? Because Cora needs to be with a doctor who has traveled
this journey with us since the first week of Cora's life. A doctor
who knows my child as well as I do and who can tell , just by looking
at her and holding her, how well Cora is or isn't doing.
Cora
is worth the time and she makes these moments of quiet a welcome gift
for her chauffeur. Quiet leads to peace and in that moment of
reflection I again understood what this child has given to me and to
others. Some label her as a special needs infant or just a baby with
Down syndrome, one with a heart defect that has jetting sutures.
Some see her as a patient number and miss out on the wonderful gift
she has to offer.
For,
when I look into her eyes I see abundant good, awesome joy, heartfelt
peace and open love. I see myself in her eyes and I am thankful for
this quiet reflective moment she has been able to offer me. A moment
I might have missed if I had not chosen to take this journey with
Cora Jean. I've said it before in this blog, and I am gonna say it
again...thank God she is sharing her gift with me and that I am still
young enough to learn from a child.
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