Small achievements lead to great victories!
That is the statement for today. Cora has struggled with using a fork for a few weeks now, and finally, achieved success. She was so happy with herself that she waved the fork in the air after getting her piece of scrambled egg on it. The egg immediately flew off the fork and Cora learned an important lesson. Swinging a fork makes you loose the food you just put on it! LOL.
Not to be undone by the fork, she went right back to trying again and was successful at getting another piece on her fork and fed herself. This is a wonderful milestone for Cora and I spent the greater part of a half hour clapping and encouraging her whenever she was successful.
She now spends most of her mealtime alternating between fork use and hand use. It is a great victory for Cora as she was tenacious and kept trying until she succeeded.
Remember its not how fast you run the race, its finishing it that really brings on the feeling of accomplishment.
Wednesday, July 10, 2013
Thursday, July 4, 2013
Advocate with Love
Its not "get -downs- with that"
It is "get down with that"
It is "get down with that"
Its not " get -downs- from there"
It is "get down from there"
Its not "turn that frown upside- downs-"
It is "turn that frown upside down"
Its not " a downs child"
It is " a child with Down syndrome"
Its not "Downs, Downs syndrome, or even Downsy"
It is not an opportunity for anger when you hear these words. However, it is an opportunity for education and awareness.
It is not an opportunity for anger when you hear these words. However, it is an opportunity for education and awareness.
When someone repeats a term they have heard about our children with Down syndrome, instead of getting defensive and angry, use that moment for your own personal growth and the other person's growth.
Educate them on how your child is a child first and foremost. Advocate for them to see your child as a human first and to see the Down syndrome second. Help them too understand. Remember this: understanding, awareness, compassion, acceptance and listening cannot be heard over anger, but it will be heard through love.
Monday, July 1, 2013
Been a long road
Since publishing the book, Cora and I have been very busy. The positive response to the book, via emails and letters, continues to flow everyday. For this I am thankful and grateful. My biggest hope with the book is that is will help educate people and open their eyes.
When looking at Cora I truly don't want someone to focus on Cora's Down syndrome. I would like them to see her for what she is...a beautiful and delightful little girl.
I continue to strive to educate people. It is my belief that ignorance breeds hate while education paves the road for acceptance and understanding. I have become an ambassador for Michigan for the National Down Syndrome Society and I am learning how to do this to the best of my abilities. In continuing to educate myself I can continue to educate others. I didn't know over two years ago where my path would lead, but today I am a willing advocate for my daughter and if you are reading this and you have a child with Down syndrome, than I am willingly advocating for you child as well.
Today marks the day of the national press releases for the book. With that knowledge I sent prayers for positive minds and open hearts in all who are touched by that press release. When I received a list of everyone that was receiving a notice today, I was astounded by the number of contacts. It took up 22 pages on my word program! Yes, that is a great deal of people who will now be aware of the book. Yet, that is also a great deal of people who are being offered the gift of sharing this book with everyone they know, but media, newspapers, radio stations, ect.
If, in that sharing, one mother gains the courage she needs for raising a child with Down syndrome than the book is serving its purpose.
So today, while this has been a long road for Cora and I , it marks a new part of our journey. One that is filled with continual blessings.
When looking at Cora I truly don't want someone to focus on Cora's Down syndrome. I would like them to see her for what she is...a beautiful and delightful little girl.
I continue to strive to educate people. It is my belief that ignorance breeds hate while education paves the road for acceptance and understanding. I have become an ambassador for Michigan for the National Down Syndrome Society and I am learning how to do this to the best of my abilities. In continuing to educate myself I can continue to educate others. I didn't know over two years ago where my path would lead, but today I am a willing advocate for my daughter and if you are reading this and you have a child with Down syndrome, than I am willingly advocating for you child as well.
Today marks the day of the national press releases for the book. With that knowledge I sent prayers for positive minds and open hearts in all who are touched by that press release. When I received a list of everyone that was receiving a notice today, I was astounded by the number of contacts. It took up 22 pages on my word program! Yes, that is a great deal of people who will now be aware of the book. Yet, that is also a great deal of people who are being offered the gift of sharing this book with everyone they know, but media, newspapers, radio stations, ect.
If, in that sharing, one mother gains the courage she needs for raising a child with Down syndrome than the book is serving its purpose.
So today, while this has been a long road for Cora and I , it marks a new part of our journey. One that is filled with continual blessings.
Tuesday, May 28, 2013
A book giveaway for The Gifted Choice
Goodreads Book Giveaway
The Gifted Choice
by Katrina Head
Released April 17 2013
Giveaway ends in 29 days (June 27, 2013)
2 copies available, 81 people requesting
2 copies available, 81 people requesting
Monday, May 13, 2013
Motor skill development
I have decided I would allow Cora the pleasure of crawling around outside. She has outgrown her ankle braces and I was looking for ways to strengthen her hip muscles. I figured, if her hips were stronger this strength would travel down her legs to her ankles and feet. It surely couldn't hurt to try my theory.
With that in mind, I took Cora outside and allowed her to wander to her hearts content around the yard. This involved many stops to explore a fallen leaf, a rock, a sand pile, a clod of clay, a clump of dropped hay, a growing pin tree and following a slow moving cat down the driveway to the barn.
My idea seemed to be working and Cora loved the new found freedom of being allowed to roam non-stop with just a little direction from Mama. As Cora continued to explore I watched her climbing over things, around things and under things. It gave me opportunities to show her new signs/ new words and enabled me to see the change in her leg strength and development of her motor skills right in front of me.
Within an hours time Cora's legs that were being used in a side crawling motion, were now directly under hips with toes pointing to the ground instead of to the sides. She has always been a strong crawler and can scoot along on her booty with the best of them, but the obstacles and change in terrain offered her body some quiet signals that it needed to fix what has been weak.
Today my life lesson was agreeing that the braces help Cora, but mother nature was able to provide her the exercise that was also needed. While I continue to look at the resources offered for Cora, I also continue to find that my mother's instincts are still working in her favor. My life lesson? Keep following my mama intuition because it offers Cora growth as well as a fun time!
With that in mind, I took Cora outside and allowed her to wander to her hearts content around the yard. This involved many stops to explore a fallen leaf, a rock, a sand pile, a clod of clay, a clump of dropped hay, a growing pin tree and following a slow moving cat down the driveway to the barn.
My idea seemed to be working and Cora loved the new found freedom of being allowed to roam non-stop with just a little direction from Mama. As Cora continued to explore I watched her climbing over things, around things and under things. It gave me opportunities to show her new signs/ new words and enabled me to see the change in her leg strength and development of her motor skills right in front of me.
Within an hours time Cora's legs that were being used in a side crawling motion, were now directly under hips with toes pointing to the ground instead of to the sides. She has always been a strong crawler and can scoot along on her booty with the best of them, but the obstacles and change in terrain offered her body some quiet signals that it needed to fix what has been weak.
Today my life lesson was agreeing that the braces help Cora, but mother nature was able to provide her the exercise that was also needed. While I continue to look at the resources offered for Cora, I also continue to find that my mother's instincts are still working in her favor. My life lesson? Keep following my mama intuition because it offers Cora growth as well as a fun time!
Monday, April 29, 2013
Wow....Cora
Cora is at a point in her short life where everything is an adventure. She explores and points and asks questions. She wants to know what things are and how they work. After being shown a few times, she will try to work whatever the gadget is herself. Her language skills keep improving and she has started to walk behind her little bike that her Papa and GG got her for her birthday. Yes, she is certainly mobile and determined.
As read that, I hope the first thought in your mind was similar to mine as I typed it. Wow, I am listing regular kids stuff! What an amazing feeling. Still, this late in the game, I often hear about what Cora can't do, isn't doing, or should be doing. Still, this late in the game, I often respond with "Let's focus on what she IS doing, CAN do and WILL do.".
Is this walk with Cora on her journey a challenging one? Absolutely! But in all things, if you stand back and look at it with a solid faith, it becomes ever doable, ever loving and ever rewarding.
The latest accomplishment was a review that was done for Early On. A test to see how far Cora has progressed, and of course, where she is lagging. The one part of the test asked about her language skills. It asked if she was saying three or four word sentences. I said, "Yes, she signs a three word sentence." I was told that didn't count, that it had to be verbal responses. Didn't count? How does that not count? It requires cognitive reasoning and developmental understanding to speak or formulate a three word sentence. I again grew frustrated with the system of testing that we have available for our children with certain needs.
How would that test qualify a deaf child who cannot speak other than through sign? Or a mute child that cannot speak with the use of her hands? To me, it only focused on what Cora wasn't doing, according to someone's requirements. It did not take into consideration that Cora can , and does, often speak in two, three and rarely four word sentences. While the words are spoken through sign language, they are spoken in a way that is understood by another person. Is the use of hand language not a form of speaking?
While the Early On team was impressed with Cora's ability to sign and even "talk" with them, the paper form did not allow the reward for Cora. Did not allow for the recognition of the work it takes for Cora to have learned the signs and talk with others.
So again, while others focus on what Cora isn't doing....I will focus on what she is doing and continue to share in her WOW moments! You can do the same for yourself. Instead of focusing on what you aren't doing, or haven't achieved, look at what you have done and are doing. You will probably have a WOW moment of your own.
As read that, I hope the first thought in your mind was similar to mine as I typed it. Wow, I am listing regular kids stuff! What an amazing feeling. Still, this late in the game, I often hear about what Cora can't do, isn't doing, or should be doing. Still, this late in the game, I often respond with "Let's focus on what she IS doing, CAN do and WILL do.".
Is this walk with Cora on her journey a challenging one? Absolutely! But in all things, if you stand back and look at it with a solid faith, it becomes ever doable, ever loving and ever rewarding.
The latest accomplishment was a review that was done for Early On. A test to see how far Cora has progressed, and of course, where she is lagging. The one part of the test asked about her language skills. It asked if she was saying three or four word sentences. I said, "Yes, she signs a three word sentence." I was told that didn't count, that it had to be verbal responses. Didn't count? How does that not count? It requires cognitive reasoning and developmental understanding to speak or formulate a three word sentence. I again grew frustrated with the system of testing that we have available for our children with certain needs.
How would that test qualify a deaf child who cannot speak other than through sign? Or a mute child that cannot speak with the use of her hands? To me, it only focused on what Cora wasn't doing, according to someone's requirements. It did not take into consideration that Cora can , and does, often speak in two, three and rarely four word sentences. While the words are spoken through sign language, they are spoken in a way that is understood by another person. Is the use of hand language not a form of speaking?
While the Early On team was impressed with Cora's ability to sign and even "talk" with them, the paper form did not allow the reward for Cora. Did not allow for the recognition of the work it takes for Cora to have learned the signs and talk with others.
So again, while others focus on what Cora isn't doing....I will focus on what she is doing and continue to share in her WOW moments! You can do the same for yourself. Instead of focusing on what you aren't doing, or haven't achieved, look at what you have done and are doing. You will probably have a WOW moment of your own.
Friday, April 19, 2013
Cora's story is published
Todays blog brings great news! The book that everyone kept encouraging me to write, to share Cora's story and the faith it took to get where we are today, has been published.
As you read this blog, the book is officially LIVE! That means, it is ready for people to purchase the book and read our story.
Click on the link below and it will take you to the book. Once you reach the page, scroll down a little and you will see the cover of the book.
I want to thank you for your continued support during Cora's journey. I look forward to continuing to share our journey with you.
Blessings,
Katrina Head
http://bookstore.westbowpress.com/AdvancedSearch/Default.aspx?SearchTerm=katrina+head
As you read this blog, the book is officially LIVE! That means, it is ready for people to purchase the book and read our story.
Click on the link below and it will take you to the book. Once you reach the page, scroll down a little and you will see the cover of the book.
I want to thank you for your continued support during Cora's journey. I look forward to continuing to share our journey with you.
Blessings,
Katrina Head
http://bookstore.westbowpress.com/AdvancedSearch/Default.aspx?SearchTerm=katrina+head
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